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Anyone else with a child with movement disorders?

2 replies

Mumtojackson · 06/07/2012 15:56

Hi,

I was just wondering if there was anyone out there with a child with movement disorders? My son has dystonia + episodes of chorea (20+ per day). We are still not sure why and waiting for diagnosis. He is 11 months and it began at 6 months. Would love to hear from anyone else who has experienced this.

Thanks!

OP posts:
bassingtonffrench · 07/07/2012 18:52

yes! I've p-med you. at least i've tried to. relatively new to mumsnet!

cordysmum · 13/07/2012 19:17

Looking for a pushchair for DD but they are soo freaking expensive! We will most likely need one for the next 2 years but the Maclaren major elite is min of 240 pounds and raincover etc 200+

Does anyone know of any help you can get or how u get help etc that may be available for this cost.

DD has epilepsy, hypermobility and global developmental delay.

any thoughts appreciated x

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