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*quite rare* its not celebral palsey but same symptoms, please read if you think you could give me advice

1 reply

misslala1987 · 09/03/2012 14:07

after 7 months of physio therapy, a blood test, urine test and m.r.i scan. we now know our daughter has dekay in maturation of her brain. she is 19 months old, cannot yet crawl walk or stand alone. she has a standing frame and we practise standing against objects, the physio theraapist says she is happy and says my daughter is slowly progressing though she says she is still abit curious about some of my daughters ways. i.e when she sits, she sits in more of a slouched position with her pelvis tilted forward and her legs out straight and quite stiff. she says my daughter shows signs of a child with celebral palsey but she doesnt have it! ive never met a parent whose child has had the same diagnosis and delays. just want to know if there is anyone who has similar experience? and what you might have been through

OliviaMumsnet · 09/03/2012 22:56

Hi there OP
you have posted this twice - we deleted the other one which, rest assured, only had one reply on it, bumping for you. That poster alerted there was a duplicate.
Hope you can get some help and my post will bump you too.
Thanks
M Towers

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