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Original poster

Glut1 DS aka De Vivo Disease

2 replies

zebradebra · 28/09/2011 15:25

Hi
I was just wondering on the off chance, is there any one alse out there that has a dc with this disorder?? Our DD is awating a diagnosis. I am aware it is a rare disease but thought i would try and see if there is anyone else out there.

Thanks in advance.

OP posts:
totallyyours · 30/09/2011 17:16

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Jessicoco1983 · 23/09/2021 19:15

My son is waiting for confirmation of glut1 ds. How are you talking the news?

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