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MRI result - help?

28 replies

JoMaman · 23/02/2011 11:27

ds1 had a MRI last year following detection of a chromosomal imbalance, following his dx of autism.

We got the results back as 'brain looks slightly immature but this is what we expect from developmentally delayed children - the good news is no abnormalities.'

I requested the actual images as I felt ds1 had gone through a big deal to get them and if we ever wanted a 2nd opinion etc...

Upon re-reading the results the doctor (who is geneticist not neurologist) wrote to us saying that she had over-simplified the results and there is actually an abnormality, but not a specific one (I guess that means one with a name/disorder attached?).

Feel like I am having an out of body experience, am just sitting here in shock.... want to see if anyone on here has experience of 'complex cortical folding on interior surface of both temporal lobes' and also am I within my rights to now ask to be referred to a neurologist about this? I presume that nobody will be able to do anything about the abnormality but I think having it explained to us and having the opportunity to ask questions would be helpful (as was the case with his genetic problem).

Grateful of any experiences :(

OP posts:
nightcat · 07/04/2011 21:19

Jo, I now finished the book and am rather impressed. Really liked it, thank you!!
It helped me to unravel some of my own stuff and it certainly has great pointers! Even the possible connection of tv/add traits makes vague sense to me, what do you think?

Now I really want to know what else is on your reading list? Someone mentioned Oliver Sacks books, have you read any?

nightcat · 07/04/2011 21:20

.. and how are you keeping?

nightcat · 10/04/2011 21:53

JoM, have you seen an article in today's Sunday Times? A new book on neuroplasticity due out in May, Doidge has mentioned this guy's research in his book. The reviews look good..

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