Ehlers Danlos Article - Special suit

[Lougle]

Second skin gives new lease life to toddler whose joints dislocated

Thank you for posting this, my son has this condition and I had missed this, you are a star, I'm printing it out and showing it to his team at GOSH as well as his 'unbelieving' school! xx

these are commonly used for children with cp as well - dd2 had one and i know lots of other mn kids have had one... gosh will be more than familiar.

some areas don't provide them on the nhs and you'll need to secure charity funding.

search a few threads on here - lycra suits come up quite often.

Thanks, we'll see what we can do, and will speak to the physio's at GOSH.