Active discussions

Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

Talk
Premature birth

Connect with others and find premature birth support.

Original poster

Currently in NICU with 1lb 25wk very sick baby boy.

674 replies

Supershiv1 · 23/04/2013 10:57

How do I cope??
Have googled but I can't find comparable stories. All others involve babies twice the weight.
Am struggling to be sure I am doing the right thing putting my baby boy through all this.
He has grade 4 IVH & grade 2 so have no idea of quality of life at the end of all this.
Having said that he has fought for 10 days so far. The other parents in NICU have heavier babies and not the bleeds so feel like their problems are trivial compared to my baby boys.
I feel very weepy even though I am trying to put a brave face on.
How much more can my baby boy take? I can't hold him and I just want to tell him it will be ok but I don't know that it will.

OP posts:
NewToAllThis11 · 27/09/2013 10:24

Good news - come on, Oliver!

zoesmum2012 · 28/09/2013 20:35

Hi I've been keeping an eye on this chat for a while and never have posted ( bit like a creep :) ) when pg with Dd had lots of bleeding lack of kick etc and was told mc was likely then preterm labour was likely but she fought hard and was only 1 day early at hospital apart from light th she was perfect but soon after going home was when the hospital admissions came felt like we were spenting more time in hospital then at home no1 ever noing what was wrong never staying for more then a few nights . All your posts kept me strong so thank you :) my couoin was born at 24 wks 23yrs ago and now she's married job and happy and heathy hope that makes one of you brave strong women strong. Good luck !

SundaySunshine · 01/10/2013 09:44

Hi Shiv, great news on Oliver's progress and lovely to hear he's giving you those gorgeous gummy grins. Hope your DHs return to work is going ok, must be hard on both of you. Fingers crossed you'll be on your way to your local hospital soon xx

Original poster
Supershiv1 · 01/10/2013 23:50

Ahhhhh no smiles the last few days, but he's had a good sats study again and tge flow is being turned down.
We're having a meeting on Thursday with the consultant from Chester getting ready to move back to the paediatric ward there xx

OP posts:
NewToAllThis11 · 02/10/2013 11:47

That's great, Shiv. Does that mean he's on nasal cannula low flow oxygen now? That's a big step forward. Good luck for the meeting on Thursday - hope you get back to Chester soon - and then home! x

thomasmad · 02/10/2013 20:20

Great news Shiv,hope that meeting goes well and that you are soon on the move to your home hospital. Take care x

Beginningofthejourney · 03/10/2013 19:11

Hope the meeting went well Shiv x

Original poster
Supershiv1 · 05/10/2013 10:07

He's not strictly on low flow as he is having humidification added, but he's only on one litre at thw mo and looking to turn the humidity off tomorrow.
The meeting with the Chester consultant went well and barring major catastrophe we'll be heading back to the peads ward in Chester the week after next. He'll have his own room and there's dedicated play nurses to help with his development.
Can I see the light at the end of the tunnel? :-D

OP posts:
StillNoFuckingEyeDeer · 05/10/2013 12:11

Grin Grin Grin

NewToAllThis11 · 05/10/2013 12:41

Woo! Great news x

georgedawes · 05/10/2013 14:23

brill news

TwentyTinyToes · 06/10/2013 09:08

There is definitely a little chink of light. Well done you and well done Oliver (and MrShiv too) Grin

thomasmad · 06/10/2013 16:10

Brilliant news!! it may take time to adjust to the new hospital/staff, especially when you will have formed relationships at the old place but it sounds like the communication between the hospitals is very good and that the best care possible will be in place for Oliver. Plus it is a huge step along the road to home and normality. Will be thinking of you and hoping transfer goes smoothly!!

SaskiaRembrandtVampireHunter · 06/10/2013 16:20

I've been following this thread too - that is great news!

SundaySunshine · 07/10/2013 00:20

Way to go Oliver!! High five xx

MiaowTheCat · 07/10/2013 12:39

This reply has been deleted

Message withdrawn at poster's request.

Original poster
Supershiv1 · 12/10/2013 12:35

So in the past week Oliver has had his humidity turned off and peogressed to .5 litres of low flow. We've visited the ward in Chester and transfer is definitely on!
Argh! I am now panicking that I am not organised at home!
Smile

OP posts:
Floralnomad · 12/10/2013 15:21

Excellent news ,hopefully he will be home soon x

Beginningofthejourney · 12/10/2013 16:46

I am so excited for you Shiv well done Oliver! X

thomasmad · 12/10/2013 16:54

Super news Shiv, keep us posted once Oliver has settled in at his new ward.

DIddled · 12/10/2013 16:59

Fab give him a kiss from me!!! X

KateCroydon · 12/10/2013 19:10

Wonderful news. Sending virtual hugs.

NewToAllThis11 · 12/10/2013 22:38

That's amazing progress. Hope the transfer is quick and easy and he's soon settled into his new room. Very pleased for you, Shiv x

HappySmileyFace · 15/10/2013 12:20

Great news! Very happy for you.

McKTastic · 16/10/2013 09:18

Hope the last few days where you are are not too emotional & the transfer goes well. Chester here you come! Great news Grin

Swipe left for the next trending thread