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Premature birth

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Original poster

Currently in NICU with 1lb 25wk very sick baby boy.

674 replies

Supershiv1 · 23/04/2013 10:57

How do I cope??
Have googled but I can't find comparable stories. All others involve babies twice the weight.
Am struggling to be sure I am doing the right thing putting my baby boy through all this.
He has grade 4 IVH & grade 2 so have no idea of quality of life at the end of all this.
Having said that he has fought for 10 days so far. The other parents in NICU have heavier babies and not the bleeds so feel like their problems are trivial compared to my baby boys.
I feel very weepy even though I am trying to put a brave face on.
How much more can my baby boy take? I can't hold him and I just want to tell him it will be ok but I don't know that it will.

OP posts:
yawningmonster · 29/06/2013 12:10

Hi just wanted to add in at this point. I always keep an eye out for NICU threads as we have been through it and know how harrowing it is. I don't usually post as I don't think our story relates very well (pretty much the opposite story to yours in that ds was full term and far and away the largest baby in NICU, unfortunately he was also one of the sickest. One of the reasons I am posting though is your last post as ds had mutiple bowel difficulties including herniation due to strangulation. I'm not sure if any of my experiences will be helpful but just wanted to put here that some of our experiences may be similar and I am willing to share and to listen if it is of any help or support at all (my ds will be 9 this year by the way)

BoreOfWhabylon · 29/06/2013 12:15

That is good news Shiv. Wishing and hoping that Oliver will now start to make progress. What a little fighter he is! Best wishes to all the Shivs xx

evelynj · 29/06/2013 12:27

Delurking to say so pleased he's through the op-your family have been through so much. Keep strong & draw all the strength you can from the outpouring of support thats here for you.

Thinking of you & Oliver & crossing everything that this is a turning point for the better. You're all doing so well. Keep positive x

TickleMyTitsTillFriday · 29/06/2013 12:46

What a strong little boy. He sounds like a little miracle fighter to me! Stay strong, we are all behind you.

Christelle2207 · 29/06/2013 12:56

really pleased there is some good news shiv. I work with the NHS and I know alder Hey is one of the very best places to be.

ajandjjmum · 29/06/2013 13:41

Not seen this thread before. You are amazing Shiv - praying for you and Oliver.

MightBeMad · 29/06/2013 15:35

Well done Oliver!!! My thoughts as ever are with you all shiv. I hope he's doing well this afternoon x

HairyPotter · 29/06/2013 15:38

Wonderful news! Well done Oliver xx

Thinkingof4 · 29/06/2013 16:45

Oh that's great news shiv I was awake at 4am this morning thinking about you and Oliver. Really hope this is a turning point and things start to get a little easier for you all x

PacificDogwood · 29/06/2013 20:50

Oh fabulous news - what a strong, strong child you've got there, Shiv Smile!

I am truly in awe at how fierce the will to live is in the tiniest, illest of babies... Well done, Oliver. I hope this will turn out to be the turnaround you've been hoping for.

I am keeping everything crossed x.

katydid02 · 29/06/2013 20:52

Fantastic news :) He's a superstar, yes - and it sounds like you are too.

plonko · 29/06/2013 21:08

Shiv I just wanted to post and say you are amazing. So glad the op went well, Oliver sounds like a stubborn little fighter Flowers

Zhx3 · 30/06/2013 13:55

Great news Smile. Flowers for you all x.

Cheeseandbread · 30/06/2013 22:17

Shiv Great news for the little fighter! Well done Oliver. I will continue to keep him in my thoughts and prayers xx

SundaySunshine · 01/07/2013 14:08

Fantastic news Shiv Grin so so glad it went well, hope the op recovery is going well too. How are you and MrShiv holding up? Xx

Original poster
Supershiv1 · 02/07/2013 09:38

Soooo the plan is to wean his pain relief, get him back to full feeds and get him off the vent. He's had amazing gases since the operation and is already on extubatable pressures and is in air -30% oxygen at different times.
Love him so much, this has to be the break we/he's been waiting for xx

OP posts:
Cheeseatmidnight · 02/07/2013 09:45

Thinking of you and sending love xxx

Thinkingof4 · 02/07/2013 10:00

Sounds really positive shiv will keep you all in my thoughts

MiaowTheCat · 02/07/2013 12:18

This reply has been deleted

Message withdrawn at poster's request.

Christelle2207 · 02/07/2013 12:42

such good news

MrsRoss26 · 02/07/2013 13:07

Great news shiv! Keeping an eye out for more updates as they come, and hoping Oliver continues his fab progress Smile Smile

dinkystinky · 02/07/2013 13:16

Wonderful news Shiv - so delighted for you and Oliver and all the family. Keeping everything crossed his amazing progress continues apace.x

MightBeMad · 02/07/2013 14:05

Great news that Oliver has a good few days. Come on little fighter!!

Cheeseandbread · 02/07/2013 15:13

Well done Oliver! Xx

Isitme1 · 02/07/2013 15:30

Aww thats great hes getting better
X

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