Active discussions

Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Talk
Premature birth

Connect with others and find premature birth support.

Original poster

Currently in NICU with 1lb 25wk very sick baby boy.

674 replies

Supershiv1 · 23/04/2013 10:57

How do I cope??
Have googled but I can't find comparable stories. All others involve babies twice the weight.
Am struggling to be sure I am doing the right thing putting my baby boy through all this.
He has grade 4 IVH & grade 2 so have no idea of quality of life at the end of all this.
Having said that he has fought for 10 days so far. The other parents in NICU have heavier babies and not the bleeds so feel like their problems are trivial compared to my baby boys.
I feel very weepy even though I am trying to put a brave face on.
How much more can my baby boy take? I can't hold him and I just want to tell him it will be ok but I don't know that it will.

OP posts:
Original poster
Supershiv1 · 27/06/2013 13:33

Tube change. He started bradying so forced their hand. Pressures now back up by 2 to 21, but I know he can do this x

OP posts:
Original poster
Supershiv1 · 27/06/2013 13:34

Sorry posted twice.
Mama all I know is we need him off the vent x

OP posts:
Cheeseandbread · 27/06/2013 14:00

Still keeping the little fighter in my thoughts and prayers. Xxx

Mama1980 · 27/06/2013 14:08

I wish there was something I could say. I have everything crossed for good news soon. X

CelticPromise · 27/06/2013 14:13

Still here willing him on. I'm sorry it hasn't been a good day. Come on Oliver, more good gases soon x

MABS · 27/06/2013 18:03

praying for you both x

Original poster
Supershiv1 · 27/06/2013 23:13

He's up to 25 on the pressure and has had to be sedated because he's fighting the vent :-(

OP posts:
Christelle2207 · 27/06/2013 23:20

Not posted before but Thinking of you both tonight x

Mama1980 · 27/06/2013 23:26

Thinking of you. Hoping Oliver has a good night xxx

PacificDogwood · 27/06/2013 23:30

I have everything crossed for Oliver here.
Wishing you all a relaxed night - no fighting the vent.

Barbarashop · 27/06/2013 23:32

Thinking of you x come on little Oliver x

UnrequitedSkink · 27/06/2013 23:37

I'm thinking of you too. Come on little man. X

HairyPotter · 27/06/2013 23:38

Late to this, but I had to post and say how gorgeous your boy is. I'm so sorry to hear the latest news. He is such a fighter and you are doing an amazing job of being him mummy.

Sending love and hope that things start to get easier for you all.

chubbychipmonk · 27/06/2013 23:40

What a little fighter you have! Thinking of youThanks

CelticPromise · 27/06/2013 23:46

Oh bless him. I remember DS being given paralysing drugs on the vent, he still managed to kick his little legs. Saying a little prayer for a peaceful night for you both and a better day tomorrow.

IdaClair · 28/06/2013 00:15

Crossing my fingers for you and little Oliver x

Mama1980 · 28/06/2013 08:41

Hoping You have a better day today, we're all rooting for you, Oliver xxx

HappySmileyFace · 28/06/2013 08:48

Thinking of you and your little baby. Sending hugs and support your way.

OhBotheration · 28/06/2013 09:08

Hope you and Oliver have had a peaceful night. Willing you a good day, good gases and lower pressure. These babies will never know how much they terrified us, will they? x

clucky80 · 28/06/2013 09:13

I haven't posted on here before but just wanted to say you are all in my prayers. Oliver sounds like a little fighterx

Original poster
Supershiv1 · 28/06/2013 11:39

Oliver is being transported to Alder Hey today as he needs an operation on the hernia - all along that has been preventing him from getting off the vent. His abdomen is so distended it's squashing his lungs.
Please pray for him xx

OP posts:
Mama1980 · 28/06/2013 12:39

I don't pray but I am sending all the good wishes in the world Oliver's way. Keep fighting Xxx

Charleymouse · 28/06/2013 12:50

Supershiv am praying for baby Oliver now. Best wishes and big hugs. Take care my love
CM
xxx

BoreOfWhabylon · 28/06/2013 13:26

Wishing hard for Oliver. xxx

drinkyourmilk · 28/06/2013 13:48

Just read this thread through.
Sending big fat positive wishes to Oliver. X hopefully this op will make a massive difference.