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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Our baby have HLHS

3 replies

Redfluffball · 20/09/2023 21:05

Hello beautiful's

I've been to womens hospital (UK) at fetal medicine department and the news are heartbreaking something as new parents did not expect to hear. Our baby have hypoplastic left heart syndrome with means will need 3 operation as soon as it's born, then around 6months old and another one at 5 years of age and constantly have hospital routines and be on medication for rest of their life. I'm currently 23weeks and it's my first baby we going to fight till the end and we not gonna give up. Hope, faith, love. My question is to anyone who's dealing with HLHS what to expect? Is there any stories would you like to share with me, I would love to hear anything and learn. Thank you 💐

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AutumnDreamingx · 20/09/2023 21:46

Little Hearts Matter are a fantastic charity that will be able to offer you some more info and support, here’s the link

https://www.lhm.org.uk/

Sending my best wishes to you 💐

Single Ventricle Heart Condition Charity - Little Hearts Matter

Welcome to Little Hearts Matter. We are a national UK charity offering help to anyone affected by the diagnosis of single ventricle heart condition.

https://www.lhm.org.uk/

EMcG3 · 21/09/2023 00:50

You might have better luck posting on Mumsnet antinal testing board as opposed to this general pregnancy one. It is more specifically oriented to conditions discovered during pregnancy. I wish you all the best in your pregnancy, and a great deal of strength and courage for you and your little one.

Redfluffball · 21/09/2023 02:15

Thank you, just posted there. Very new on here

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