Hi, a 29 week scan detected two tumours in my baby’s heart - we’ve been told this could indicate tuberous sclerosis. We are awaiting further investigations but naturally I have gone into a spiral and have been looking up anything and everything to do with this disease on the internet.
I’m devastated at the idea that our little boy might have a difficult life ahead of him and I’m so anxious about what it will mean for our future. I feel really hopeless and miserable right now and was hoping someone would itch experience of this disease (either sufferers or parents of) could offer me some positive outlook.