CPAM / CCAM Diagnosis at 21 week scan

[Melworldwide]

We had our 21 week scan yesterday and were told our baby has CPAM/CCAM. Its very rare and I am looking for other mums/parents who have experience of this diagnosis, whether good or bad.. We are really worried as for some babies the outcome can be really bad although there are some lovely stories out there too. I've found medical info online but its the 'real-life' advice which we would be grateful for.
Any guidance or advice would be much appreciated.

I'm 21 weeks and baby has just been diagnosed with ccam. We are very worried.

Hi gemgem, there are two groups on Facebook I recommend you join- mums of CCAM babies and parents of CCAM babies. Lots of support there and we learned so much from the other parents. Where are you based? The thing I’ve learned is a lot can be done even if the condition gets quite bad, but the initial diagnosis and the shock has been the worst part for me. I’m 26 weeks now and the cysts stop growing around 28-32 weeks, when the baby starts to outgrow them. Did they say size and location? Sending big hugs x