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Delayed walking in child due to tethered cord syndrome?

5 replies

user1499254687 · 06/07/2021 13:30

Hi, I wondered if anyone is going through something similar. Feel quite alone is this process and haven't met any other parents who have gone through the same experience.
So my dd is 14 months old and still not walking unassisted. She can pull herself up, crawl and stand briefly before she falls on her bottom but just won't walk. My first child walked at 10 months but i know each child is different so don't want to keep comparing.
I know there are late walkers and usually no cause for concern but given that she was born with a tethered cord (which should have been resolved when she had the surgery to untether at 7 months old), I wonder if it has anything to do with that? When I do walk with her I notice her left foot points inwards (I don't remember that in my older child- is that normal sometimes?)
I'm worried now as time goes on that her cord may have retethered or that she would have already had damage nerves from before surgery (I hope not as I've read children can have incontinence and be wheelchair bound from tethered cords). Trying to stay positive but feeling so alone and worried sick for my poor little girl.
We would love to have another child but now anxious about having to go through it again with next child- has anyone had subsequent children with tethered cord? Did you take High strength folic acid or the activated form (5 methyl tetrahydrafolate)?
Hope someone out there can give me some advice and reassurance x

OP posts:
onlyreadingneverposting8 · 06/07/2021 13:32

The average age for waking is 15months. Doctors aren't concerned unless baby isn't showing signs of walking by 2. It sounds like your baby is almost there anyway - cruising etc.

YanTanTethera123 · 06/07/2021 13:46

My first walked at 9 months, my second was 15 or 16 months old. I honestly wondered if he’d be crawling to school at one point!

Leafblower14 · 06/07/2021 14:53

My son did not walk until 26 months, nothing wrong with him, we have no idea why he walked so late, he crawled at 16 months which was also really late and before that would just sit there , He's now 3 and you'd never have thought he walked late, i guess he just did it in his own time

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Leafblower14 · 06/07/2021 14:55

His feet also turned inwards but the longer he's been walking it seems to have corrected itself , sorry i am no knowledge about tethered cord x

Sunny4876 · 06/07/2021 15:06

My children were 13 months and 19 months.

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