Some good news I have to share with you all!!

[catj]

I know I don't post very often but there are a few people on here who know me.

Dd4 has FINALLY been discharged from hospital.

Don't know what he was in for, but it doesn't matter now, am very, very pleased for you all

Well done catj and all the best to dd4!

I am more of a lurker but i know some of your story and am really pleased to see this!

sorry don't know your story but glad to hear that.

Hooray

How is she doing? Will she need any further surgery?

Everyone is astounded at how well she has done. (We were given the ultimate bad news in July & she decided differently).
She now has overnight feed via a gastrostomy but does eat & drink fairly well in the day too.
There's no more cardiac surgery planned-it depends on whether her arteries grow sufficiently.

Glad to hear it Catj - sorry, don't know backgrount but sounds as if your dd is doing really well.

Fab news
lets hope she behaves with her sisters!!!

I don't know your story, but it sounds like you have all been through an awful lot. I am glad she is back home woth you.

Oh what great news ... and just in time for Christmas too. What a lovely pressie for you all. .

So, so pleased for you all. Hope to see you soon.

xx

CAtj that is fabulous news
I do remember when she was first rushed to Southampton, as that's where my dd was rushed to as a 6 wk old.
My dd was seen by Tony Salmon - wondering if it was the same cardiologist?
Glad your dd is making such good progress - if you don't mind explaining, is she likely to make some progress on the gastro front as she grows?

How lovely to have her back for Christmas.

Congratulations

Good news CatJ

Piffmas-she is seen by Kevin Roman at Southampton. She eats & drinks normally during the day-just not in large enough quantities at the moment so the majority of her calories are overnight. Hopefully this wiil improve now she's home and able to watch her sisters!
Picture posted here