Zombie and the Phalanx climb Herceptin Hill

[IamtheZombie]

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Hope all has gone OK &that you got a lovely Maccy D's breakfast.

iklboo - How are you? Any better yet?

Hi Magi - finally got a diagnosis yesterday. Vestibular neuritis (sounds like a Harry Potter spell)! Some permanent nerve damage but not too serious. I've got appropriate meds & targeted exercises to do and another two weeks off to let them kick in

All being well I'll be about 95% fit soon, which is close enough for me. Doc says there may always be some balance issues in certain circumstances (v tired, cold / flu, moving quickly suddenly) but much better than I HAVE been.

Well, as Buffalo Springfield so aptly sang:

"Paranoia strikes deep
Into your life it will creep
It starts when you're always afraid
Step out of line, the man comes and takes you away"

Herceptin infusion went like clockwork. But...

I wasn't allowed to see my scan results. Apparently there's a new policy that says patients may only receive the results from their consultant. As I doubt most patients ask to see their results before the appointment with the consultant, I suspect my oncologist has put something in my notes just about me.

That leads me to suspect that the news is NOT good. Frankly I'd rather know that ahead of time so I can prepare my questions. My appointment with the oncologist is 9.00am on Friday so it's not long to wait but I really wish I could prepare.

I will speak with the oncologist and explain why I want to know my results ASAP and ask for an exemption from the "new policy".

< Not the happiest Zombie in the graveyard >

Oh Zombie - you do sound pissed off - and am not surprised.

I sort of assume that you will prepare for the worst pre appointment & we will all be hoping that it's going to be better than you think.

Kick ass with that consultant - they are not gods, even though they think they are.

Iklboo - I am so pleased you have a diagnosis (off to google it shortly) - nothing is worse than not knowing.

Oh Zombie that's rubbish. Although from a relative's experience the 'only consultant to give results' rule was brought in for her as she was given incorrect / misleading info by the other health professional and who wasn't equipped to answer her understandable questions.

When she DID see her consultant he completely overturned what she had been told, gave her the (much better) news & prognosis and was able to give her the PROPER choices for ongoing treatment. I hope it's the same story for you.

Bloody hell love, that's tough.

They will make exceptions to that new policy, especially for someone as well informed and self aware as you.

But what a pain to have to be fighting for that along with everything else.

TeamDBF is here, stoking the fires and topping up your whisky, and as magi says, hoping the news is better than you think.

((((((big hugs)))))))

Oh Zombie I'm sorry you have to wait a bit longer for your scan results , of course we will all be keeping everything crossed that it is better than you think, much better.You are an absolute brick,,even being so worried your sense of humour is still there. Hope you manage to get a good nights sleep despite your concerns.

lin you're a brick

Stick to fingers darling, do not fall over.

I think Madonna must of been doing the same thing as me but I didn't fall down any steps neither was I surrounded by all those male dancers !

you might have been a bit distracted too lin and not had tie to post here

Will be thinking of you tomorrow Z, with everything crossed, trying not to do a Madonna.

tsk! time not tie

Am now untangled as had to go to a funeral today and then a carvery tonight. And tomorrow I am going to see " billy fury story " at a local theatre. Looking forward to that !
Zombie, here's hoping that results are much much better than what you are expecting, I can't imagine how stressful for you all this is , but you are an amazing person so we will all be with you tomorrow wishing for good news. X

Will be thinking of you tomorrow, Zombie & will keep fingers crossed - whenever practical to do so!

Thinking of you today Zombie.
Everything crossed Madonna stylee!!

I suspect we are all in heaps on the floor due to our crossing of all our limbs ! Thinking of you Zombie, I guess by now you will have spoken to relevant person.

yes lin it is a challenge to hop with crossed legs (going to fabric shop! yay!) but anything for Z!

thinking of you Zombie
let it be good news

Just because one is paranoid doesn't mean extremely aggressive nasty bastard cancer isn't out to get one.

The liver mets are back with a vengence. They are 2.8cm and 1.8cm. This compares with the original lesions which were 1.6cm and 0.5cm last June before being (temporarily) dispatched by the Docetaxel.

The Multi Disciplinary Team will discuss my case next Tuesday. The oncologist is recommending that I move from Herceptin to Kadcyla (Herceptin + Emtansine - a chemo drug which is attched to the Herceptin and directly targets the cancer cells). I will see the oncologist again within the next 2 weeks and, if all goes to plan, will start Kadcyla on 18th March. Cancer Drugs Fund here I come!

The consultant I have been seeing has left. I've not yet met the new consultant. I was seen today by my favourite senior registrar. He agrees that there's no reason I shouldn't be given my scan results before seeing the consultant if I so wish and will put words to that effect in my notes.

Now waiting for the good bit of today - my new tumble dryer is being delivered this afternoon.

oh fuck fuckety fuck

bastard cunting cancer

I love you Zombie.

Oh damn damn damn damn bugger FUCK!!!

Fucking evil bastard cancer.

Thinking of you Zombie. Hugs & much love from House Iklboo

So does that mean that if the new drugs work for you, you will be cured ? If that's so I will be so happy for you. Sounds like it will be all guns blazing to get rid of the liver mets which obviously have grown quite a lot since last year. How do you feel about having a new consultant ?
Let's all hope that can get started ASAP.
Hope you have done some washing so you can try out your new dryer !

Mummylin, no, I never be cured. All the doctors can do is to keep me going for as long as possible by giving me a new treatment every time the previous one stops being effective. I'll be attending the hospital for a treatment of some sort every 3 weeks for the rest of my life. Or, more realistically, until I decide the quality of my life has deteriorated to the point that I refuse further active treatment and just let nature take its course.

Cunting cancer.

I send my love you, dear Zombie.

We'll all be here for you, all the way, whatever.

I think it is now my duty to issue a LARGE ration of gin to the Phalanx, for the drowning of sorrows & the toasting od Zombie.

to you.

I understand now Zombie. I hope you will find the treatment bearable and stick around for a long loooong time, after all we can't gave the Damnbuggerfuck team without our leader.

Accepts drink gratefully "cheers Zombie "