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Original poster

Droile is back!

53 replies

Clarinet60 · 07/08/2006 13:58

Move is done, back online (after over 2 months offline), DS2 is still doing well, next scan in 3 weeks.

I've really missed you all so much.

The blanket looks great in Ds's new bedroom.

OP posts:
Thomcat · 14/08/2006 16:10

Sorry you're wahacked.

Has it been a year, more, that this has all been happening?
Blimey.

Give him a kiss from me please will you.

So are you getting away at all this year?

Original poster
Clarinet60 · 14/08/2006 17:15

Yes, he was diagnosed last July, hard to believe, isn't it? We have been away, thanks to the Rainbow Trust, to a lovely holiday house for ill children in Northumberland, where they cook for you and look after you. It was great.
DS1's birthday went really well thanks, Marina. We had a party, somehow!

The place in my head that controls conversation seems to spend long periods AWOL at the mo, so sorry, but my posts may be sporadic.
xxx

OP posts:
Thomcat · 14/08/2006 17:20

Really can't believe it's a year.
Glad you got away and got looked after. It sounds lovely. Great that things like Rainbow exist.
Of course, totally understand about the sporadic posts hon', hope your head clears soon and e erything is ok for you all, very very soon.
Think of you often. TC xx

Marina · 15/08/2006 10:29

Droile, I have mailed you on the old address I had for you prior to the move. If that is no longer valid I'll drop you a CAT. XXX

HappyDaddy · 15/08/2006 10:47

Who?

Original poster
Clarinet60 · 16/08/2006 13:57

I've got it thanks, Marina. Email address is still the same
xxx

OP posts:
Misspiggy · 16/08/2006 14:02

So pleased to see you back Droile and to hear that DS2 is doing well - think it was only a week or so agao that I started a thread to see if anyone had heard from you so welcome back!

Original poster
Clarinet60 · 16/08/2006 19:47

Thanks Misspiggy, I didn't see that thread. That's really kind.

OP posts:
Original poster
Clarinet60 · 16/08/2006 19:53

Just had a look at it - what a lovely warm & cared-for feeling that's given me - thanks to all of you.

OP posts:
Blu · 16/08/2006 22:40

Droile - hey! Hello. I think of you so very often, and it's great to hear you. Glad that DS is chugging along nicely - hope the seizure is a real one off.

I've been a bit here and there on Mn so have missed a lot.

What's your new house like? Any news on your book??

Original poster
Clarinet60 · 21/08/2006 13:08

Hi Blu, lovely to see you!

They didn't like some of the plot lines in the book, but liked other things, so I'm reworking it (but not at the moment).
House is great, well worth moving, not really sunk in that it's ours yet, though.
No more seizures, so we think it was because of the meds reduction.

OP posts:
saggarmakersbottomknocker · 21/08/2006 13:33

Hey Droile! - good to see you back.

Hope you'll be very happy in your new home and stay seizure - free for some time to come. Good luck for the scan.

Original poster
Clarinet60 · 22/08/2006 12:33

Thanks saggar. Scan results & discussion have been put back from 2 weeks to 3, unfortunately, but scan is still next wed.

OP posts:
saggarmakersbottomknocker · 24/09/2006 20:46

Been thinking of you Droile. Any news on ds2's scan? Fingers crossed for you.

Thomcat · 24/09/2006 21:00

Thought that was you there then Droile, would love to hear from you. how are you all?

saggarmakersbottomknocker · 25/09/2006 09:00

Bump

Original poster
Clarinet60 · 25/09/2006 13:19

Hi!
The scan results were that the tumour is still unchanged, thank goodness. We had a few more details about it though, thanks to DH's persistant questions. It's really mixed in with normal cells, so kind of impossible to separate out. We knew it was diffuse, but hadn't realised it was quite such a mixed up mess.
He is still having seizures, but not every day.
School are freaked out about it and have applied for extra teaching-assistant hours to cope with him. I'm on tenterhooks expecting phone calls from school at any moment.
In himself though, he's still a cheerful little chap and seems to have accepted school really well.
Myself, I feel like I'm in a funny suspended state that there will never be any closure from.
Met a couple we knew at the hospital whose child went through similar, except that they removed all her tumour. They are scared it will grow back and just live from scan to scan, so it was reassuring to talk to someone in the same boat.

OP posts:
Blu · 25/09/2006 13:26

Oh my goodness, Droile, what a mixed up roller-coaster of things to live with.
Excellent news that the tumour is stable, though, isn't it? I'm ever sp pleased to hear that.

Good for you re the book - good sign if they were interested in a new draft / re-work.

You have achieved so much this year, house move, new school etc.

marthamoo · 25/09/2006 13:33

Good to have you back, Droile.

FoghornLeghorn · 25/09/2006 13:33

Lovely to hear from you Droile

Good to hear that the tumour is unchanged, not so good about what a mixed up mess it is.
Glad DS is settling into school well.

dinosaur · 25/09/2006 13:35

This reply has been withdrawn

This has been withdrawn by MNHQ at the poster's request.

Original poster
Clarinet60 · 25/09/2006 13:47

It's lovely to talk to you all again.
Washed the blanket the other day and it came up perfect. I think of you all every time they watch the DVD
xxx
Thomcat, ET still going strong! xxxx

OP posts:
Marina · 25/09/2006 13:48

Lovely to see you posting here Droile XXX

ScummyMummy · 25/09/2006 13:48

Nice to see you droile. Glad the tumour is stable.

suedonim · 25/09/2006 15:18

Hello, Droile, lovely to hear from you. I've been thinking of ds and wondering how you all are.