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Mumsnetters with disabilities

Please see our webguide of suggested organisations for parents to support children with learning difficulties.

Original poster

Moms meeting with kids

2 replies

MariaSPAIN · 06/07/2025 16:51

I am the mother of a three-year-old boy with SMA type 1. I would like to share my experiences and learn more about SMA and help other families with children with this condition or similar

OP posts:
Godesstobe · 06/07/2025 17:07

Are you in the UK? If so, the charity SMA UK is an invaluable resource for individuals with SMA and their families. They have a WhatsApp group for parents (and another for grandparents), provide a monthly newsletter and organise community events. See www.smauk.org.uk, especially the community networks section.

Much love xx

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Original poster
MariaSPAIN · 06/07/2025 17:21

Godesstobe · 06/07/2025 17:07

Are you in the UK? If so, the charity SMA UK is an invaluable resource for individuals with SMA and their families. They have a WhatsApp group for parents (and another for grandparents), provide a monthly newsletter and organise community events. See www.smauk.org.uk, especially the community networks section.

Much love xx

Yes I live in uk, thanks for the info I'm going to look into it right now thanks

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