Please or to access all these features

Menopause

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Could You Help Arm Me For Monday?

9 replies

Openmouthinsertfood · 08/10/2026 22:56

Hi, I'll try and keep this as short as possible, but I think it's going to be long.
I'm 52 years old and had a totaly hysterectomy in around 2019 due to womb cancer. At the time the advice was not to go on HRT because of the hormones/cancer risk. After a long while I was really suffering with hot flushes, many, many a day so came on this forum to ask advice. I was told that the new advice was I could now take oestrogen so I got in touch with my GP and was prescibed it.
12 weeks ago I started Mounjaro for weight loss but mainly diabetes. I have since lost 3 stone in that time but some of the weight loss is down to what has now been diagnosed (Last Friday.) as an overactive thyroid. I started medication for that on Sunday just gone and beta blockers to calm my thumping heart (A known symptom.) while the thyroid medication kicks in.
Also in the same blood test that diagnosed my thyroid it was discovered I have a severe vitamin D deficency and I'm on a prescription strength loading dose of Vitamin D for three months.
I promise I'm getting to the point! Around two weeks ago I happened to have the telly on This Morning and their doctor was on talking about the findings that taking oestrogen oraly, like I do, can cause blood clots, specially in people with family history. My mum was on blood thinners for clots in her lungs before she died and my nan actually died from a blood clot. Apparently the gel or patch version completely takes the blood clot risk away. To get in touch with my doctors surgery you have to fill out a form online called an econsult so I filled one out with those details and asked to be put on gel or patches. I was given an appointment (Via phone as I'm agoraphobic.) with the surgery's pharmacist last Friday.
When I spoke to the pharmacist she told me I'd, "Been on HRT long enough and it is time to come off." I did argue my case but she was adamant. I was Googling something else later and found the advice that you don't stop HRT cold turkey anyway, and also, because of what my body is going through at the moment, the weight loss shock, the vitamin deficency, the thyroid, now is not a good time to add an extra stress of coming off HRT. To be honest I don't want to either.
I phoned my endocriologist nusre to see if she could help and she said although they don't deal with HRT, to not stop cold turkey and the current advice was for women to contine HRT to at least 60 for bone and heart health. I cheked this online and it said even this advice was out of date now and that you should continue it as long as you need it.
I wrote out another econsult this week and unfortunatley I have been given another telephone appointment for Monday with the same pharmacist. Like I said I want to contine on HRT but don't know what to say to her about it. I tried telling her my symptoms last time (Anxiety, insomnia, hot flushes, joint pain, chin hair.) and she said they could all be put down to other things. Do I have any rights to say I want to stay on it? What should I say to her to convince her I should stay on oestrogen? Any help/advice woulld be really appreciated.

OP posts:
TheDogsMother · 09/10/2026 06:10

It sounds like the pharmacist is very out of date with those views and staying on HRT into later years has many beneficial effects. Could you arm yourself with this for your next call and if they still won’t listen then insist on speaking to your GP?

I have also had a hysterectomy due to endometrial cancer and the consultant said the advice at the time was to stay off HRT. This was more due to the lack of relevant clinical studies rather than absolute proof so I am really interested to hear that advice has changed now.

Good luck OP. https://themenopausecharity.org/information-and-support/what-can-help/treatment-options/starting-or-continuing-hrt-many-years-after-your-menopause/

Starting or continuing HRT many years after your menopause - The Menopause Charity

Starting or continuing HRT many years after your menopause When should you start taking HRT? Is it ever too late to start? If you have been taking it for years, when should you think about stopping HRT? These are common questions that are often asked b...

https://themenopausecharity.org/information-and-support/what-can-help/treatment-options/starting-or-continuing-hrt-many-years-after-your-menopause/

Anguscoo · 09/10/2026 08:32

You have every right to stay on it. There is no reason to not take it until your a 100 + years.
look up the NICE guideline every medical professional within the NHS has a duty of care and the Guildlines are you have the right
to receive the correct medical care. I too had breast cancer and was told no I couldn’t have HRT . Took 3 years for get it.
please look up and put this post on the Menopause BALACE app by Dr Louise Newson . It a free app and there is a community where you can share and ask anything and everything .
Also states the Nice guildlines which you can use to your advantage on Monday, also ask for a second opinion. This is outrageous us women are having to beg for the right treatment.
I wish you well and please check out the BALACE App. Good luck and don’t take no for an answer I’m sure there is information regarding Blood clotting which is proven, what your being told is incorrect with the app. DR Louise Newson also does Podcasts and it’s amazing how much we need our hormones balanced. Especially given thyroid issues.

shopaholicanon · 09/10/2026 08:56

As a hospital pharmacist I’m embarrassed this GP pharmacist gave you outdated information. I would state your case again at your next consultation and if they don’t agree to prescribing HRT I would calmly ask for your case to be referred to a GP. I would also ask the pharmacist where the evidence is for stopping HRT after X number of years. They will not be able to find this information.

JinglingSpringbells · 09/10/2026 09:16

The British Menopause Society also has a very clear consensus statement on this which is online on their website. It's been there for a number of years.

It says there is no arbitrary time limit on hrt and each woman needs their individual risks and benefits taken into account.

It also says that HRT can be started at any age (eg over 60) but to use transdermal estrogen and start on a low dose. (not relevant to you but may be once you are over 60.)

JinglingSpringbells · 09/10/2026 09:19

@TheDogsMother The advice for hrt post-endometrial cancer is not clear cut as there are so few studies. However, it appears to be prescribed/ available for women whose cancer was stage 1 and only found in the womb.

Openmouthinsertfood · 09/10/2026 12:11

Thank you all so much for your really helpfull replies, I really appreciate it! 💕I feel armed with more backup now. I will come back on Monday and write about how it went. Thank you again, you really helped.

OP posts:
Openmouthinsertfood · 12/10/2026 13:20

Good afternoon, came back to update as promised. I have now been prescibed topical oestrogen! It was quite easy after I quoted the NICE Guidlines saying I should be on HRT as long as I think it's helping, and how it helps bone and heart heath. She did say what about cancer and I said I believe the benefits outweight the risks. She also asked about the blood clotting risk and I had to tell her that it goes away if you use gel or patches. Thank you so much for arming me with the information and the back up, I really appreciate it. 💕

OP posts:
Anguscoo · 12/10/2026 18:41

Wow Go you !
Thats brilliant news. Well done for advocating for yourself 🙌

New posts on this thread. Refresh page