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Endometriosis flare, possible kidney involvement and Mirena changes, advice needed

1 reply

lilly244 · 29/03/2026 10:15

Hi all! Just looking for some advice! The dr and hospital think that I have endotretriosis after a flare up acouple years ago where I got other extensive work done and everything pointed to it! They think it might be affecting my right kidney and scales are on that too thats why I’m getting pain! It’s flared up here and there until now where I think I’m having a big flare up due to stress lack of sleep etc! I gave lower back pain on right side, bum and thigh feel bit numb! I have nausea and pelvic area on that side is tender too! I feel like I’m constipated but not anc when I go to loo is fair bit (sorry tmi) I did have a cyst in the last big flare up which did resolve after few months too! I had mirena removed and replaced in December and feels like it’s contact hormonal problems since! My boobs are bit tender too but as don’t have periods just spotting every month maybe I don’t know if this is all ovulation either! Dr has put me on ponstan which I think hasn’t agreed with me and I have gone back to nurofen! Would appreciate any feedback please as I feel like I’m going crazy at this point! Thank you

OP posts:
JinglingSpringbells · 29/03/2026 10:59

There is a UK endometriosis charity and it may be worth reading their website and contacting anyone there for advice as this is quite specialised.

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