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In such a pickle!

10 replies

Runaround50 · 26/12/2021 10:15

Well it’s Boxing Day and I’ve been awake for hours wondering what to do.

Been on HRT patch with daily utrogestan for 16 months.
Post menopausal by 3 years. The patch suited me, mood was good and felt balanced.

Within 4 months, experienced a slight bleed.
Then 2 months later, a period type bleed.

Been bleeding on and off all year with pain.

Had 2 womb biopsies and hysteroscopy . Both clear (April 2021).

Had a further gynecologist appointment 3 weeks ago, she wouldn’t scan me, and said I must wait 8weeks!

Started bleeding last Friday, rang GP to try to escalate scan.
Called 111, was told 8 weeks is acceptable and to try to arrange private scan.

Then decided to come off HRT, , as was sick of bleeding.
HUGE mistake! Feel like I’m slowly dying. Irritable, tearful, joint aches,, jittery, lifeless, flat, just awful.

Thought I could ride the storm, but I can’t.
My body is in turmoil.
What do I do?

I cut a 100 patch to 50 and stuck that on Friday. Feel no better and period pains.

It might be better if I was dying as at least these awful feelings would disappear 😢😡

OP posts:
chickadeee · 26/12/2021 10:25

That sounds awful.
Is 111 or a&e an option if you're in such pain? If it's meno related is it worth just paying to see a menopause specialist and paying for it all privately? It sounds absolutely terrible.

Runaround50 · 26/12/2021 10:33

Chickadeee, this is just a snippet of the story.
I am a breast cancer survivor and had to go under a specialist anyway, at the Chelsea and Westminster clinic. I am not local to London else they would have scanned me earlier. It is local gynae who are dragging their feet.

I’ve also paid for a private specialist, to see what other options there are HRT wise. Trouble is, she is only prepared to prescribe minimal doses of HRT , which isn’t enough for me. Chelsea are more flexible but ideally don’t to alter my progesterone.

Such a mess

OP posts:
chickadeee · 27/12/2021 19:27

Oh no, this sounds so hard for you. I'm sorry 😢
Have you seen a Menopause specialist privately? Ive seen Louise Newton online often talks about options after breast cancer. She seems to think everyone has options. Have you seen her private clinic?

Runaround50 · 27/12/2021 19:44

@chickadeee
Yes I’ve seen a private specialist.
Well I’ve halved my patch to 50mg, so I’m keeping my fingers crossed, no bleeding. Feel slightly more balanced today, so I definitely need oestrogen.

Thanks again 😊

OP posts:
HemanOrSheRa · 27/12/2021 19:55

Do you know if your patches are reservoir or matrix? Cutting a reservoir patch destroys it so you may not be getting the dose of estrogen you think.

Runaround50 · 27/12/2021 20:34

No clue Herman.
How would I find out?
My thinking was, that if I felt okay, I would get my prescription altered to the lower dose.

OP posts:
HemanOrSheRa · 27/12/2021 20:37

What patches do you have? It should say Mx on the packaging somewhere if it's a matrix patch. I had a list somewhere but I'm damned if I can find it! How about switching to gel estrogen so you can adjust with the number of pumps you use?

Runaround50 · 27/12/2021 21:41

They are EVOREL Oestrogen only.
Just looked it up and they are matrix patches,
Have cut fairly equally so will see.

I like that steady flow of Oestrogen, however, I may just not be suited to this HRT due to the bleeding I’m experiencing.

Tried sandrena for couple of weeks and felt very ill.

OP posts:
HemanOrSheRa · 27/12/2021 23:07

Ah good. At least you are getting pretty much a half dose and can see how you go on that.

Runaround50 · 28/12/2021 17:36

Not a bad day today on the half dose Heman, but I dare not relax yet. If I can feel relatively normal on the 50 patch, trust me, I will be one happy being!!

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