See the thread here www.mumsnet.com/Talk/childrens_health/1635085-Oh-god-hold-my-hand?pg=1
I don't have much experience of the hospitals here (only orthopedics in Raffles, which was good). Can you help? I think she needs to see a paed specialist in genetics/neurological/gastro, though not entirely sure. Her DD is not growing, not putting on weight, and they haven't found a cause yet.