I spoke to a charity for my rare condition today. They told me to report some Doctors to the GMC. They are taking on work they are claiming to be specialists in, when the charity have never heard of them.
I was put in touch with solicitor after an accident via car insurance legal protection.
The last Doctor made stuff up and when I told the charity what they wrote they were horrified.
Whilst it's horrible doing this to me. Legal fees and medical reports getting paid, me no compensation at this rate, there is a big problem with our condition, parents falsely accused of NIA and FII. It's horrific to think these people behaving like this and the damage they could cause claiming to be experts in a rare condition when they are not.
What can I do?