We have just got a letter from our NHS trust to say we are now top of the waiting list. What does that mean? Will we be starting treatment very soon or will there still be a bit of a wait? I have to ring Monday to accept treatment but don't know if I can wait that long to find out! I'm excited after a long wait we are finally here but don't want to get my hopes up. We were only added to the list a few weeks ago, but there was a mess up with our referral as we were referred 3 years ago so should have been seen sooner. Thanks