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Has anybody got a child with PKU?

3 replies

mhairi13 · 28/03/2009 15:44

Hi, my son is now 2 and has PKU. I dont know anybody who has a child with PKU, or has PKU themselves and would be good to chat

OP posts:
Emmanj · 28/03/2009 19:40

you could join the online commuinty at www.pku.com/
people share their stories here, an d although i have no experience of PKU, id imagine it would be useful to chat to others. Good luck!

mhairi13 · 30/03/2009 11:14

Thanks for that, I'll definately have a look at that site x

OP posts:
mhairi13 · 30/03/2009 11:15

Thanks for that, I'll definately have a look at that site x

OP posts:
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