I’m feeling really low after six weeks of illness. It all started with a UTI, and a chest virus, which developed into a rushing/ pressure sensation in my head with lightheadedness wooziness and almost like a shock response. My hands feel stiff, my lips and face feel numb and sensitive, I get freezing cold and shaky. I’ve also had some pins and needles in various places.
Over the six weeks I’ve had episodes nearly every day, or every other day. With some odd days where I’ve felt nearly normal too.
Ive been signed off work to try to ‘get better’ as my concentration focus and eyesight were struggling. I am so fatigued, I can feel it in my arms and legs and head. My eyes are also struggling to coordinate (optician) and I get blurry vision.
More recently I’ve had sinus pain, IBS symtpoms and hot and cold spots on my body. I’ve also started to get a strange feeling come over me as I’m going to sleep and will have strange skin crawling/ twitching/ melting sensation all over for hours. If I sleep well I wake feeling shaky and groggy. The less I sleep the better I feel.
Very recently I’ve lost my appetite. I get the feeling of hunger but I don’t fancy anything to eat. I’ve lost a few pounds over the six weeks.
I've had 3 x blood tests, ECG, CT, and have been referred to a neurologist and for an MRI. The only thing flagged on the bloods was low ferritin of 25, and low vitamin d. But I was totally fine before the virus and presumably the levels would have been the same. B12 was on the lower end of normal but still fine. Same with folate. CT fine.
This illness is ruining my life and I have two small children to look after and a job to hold down x I feel so low and emotional and I’m just looking for some people to connect with/ who can sympathise or talk to me about what might be going on.
Doctors are a bit perplexed and suggestion it could be post viral syndrome but with no direction on how to get better 😢😢