Undiagnosed illness.. going out of my mind..

[JollyPombear]

For 6 months now I’ve had a severe loss of appetite, I’m living on a slice of toast a day. Lost 3 stone. I’ve got persistent nausea and even smells make me feel sick. I’m so exhausted showering makes me need a lie down. I’m tired no matter how much I sleep. Tests I’ve had
CT scan of abdomen and pelvis
virtual colonoscopy
endoscopy
full body MRI
blood test - the only anomaly is that my platelets keep going out of range then going back into range (at the higher end of normal)
doctors are a bit stumped. They’re talking about referring me to a rapid diagnosis clinic.
it’s affecting my life severely.
has anyone… anyone out there been through similar?

Have they checked for MCAS?

Nothing changed for you otherwise - hormones?

What medication / vitamins are you taking?

Could it be CFS? I know they can't really diagnose that until everything else ruled out. Did you have COVID before, could it be long COVID type thing?
I had similar issues but it was due to severe malnutrition/ED. Which it sounds like you don't have.
I'm so sorry you're feeling this way. Definitely go to the rapid diagnosis place or whatever they suggest. I hope you get to the bottom of it and feel better soon.

Push for the rapid diagnosis clinic - highlight your rapid (I presume) weight loss

Carbon monoxide poisoning?

Addison’s disease?
Hypothyroidism?
Lupus?
Some sort of infection- does anywhere hurt?

I've worked in a chronic fatigue/long Covid service and this is something that you may wish to explore op of all other tests come back normal

Were you fatigued before the low appetite or could it down to the fact you're not managing to eat enough rather than a symptom of what's causing the other issues?

Are you hypermobile? I'm just wondering about Gastroparesis. And I also second the pp who mentioned looking into MCAS

Long Covid or ME/CFS
Maybe with added MCAS or POTS

esp if tests show nothing at all

The symptoms you describe could be ascribed to having such a restricted calorie intake. Have you tried nutritional meal supplements such as Complan drinks to increase your calories

Also gastroparesis for the inability to eat