I suddenly started feeling incredibly achy about a year ago. Dry eyes, stiff, sore. I feel weak and wobbly. Then I started twitching. That’s what’s really scared me, because my calf, thigh, arm, lip, eye, all keep twitching. My hands are sometimes visibly twitching and I have to wiggle them to get the twitching to stop. I’m convinced I keep dropping things.
I’m 44. I’m convinced I’ve got ALS or something. I’m having panic attacks because I’m scared.
The doctor says I haven’t but I’m worried they’re wrong. They said my reflexes are fine, they asked me to grip their fingers and said I don’t seem to be weak, got me to walk in a straight line and said I’m fine. They did loads of blood tests and said there’s nothing wrong with me except anxiety. Yes I’m anxious - about the symptoms! I wasn’t anxious before this started!
I had loads of blood tests and there’s nothing wrong. I tried magnesium, zinc, vit D and B, iron, calcium, but nothing helps. My blood levels of those things are fine. Doctors are saying there’s nothing they can do because I’m healthy, all they can do is refer me to the “unexplained symptoms” clinic but the waiting list is a whole year.
Now I’m just sitting here crying because I’m afraid I’m terminally ill and the doctors have failed to diagnose me.