Anyone care to reflect on what these symptoms might be?

[Loadofoldshart]

I don’t even know where to begin to ask for bloods etc from a GP

Here goes!

Hypermobile

weight gain despite no change to diet or exercise (probably 2 stone in a year, now overweight)

Hip pain

Back pain

Sore foot - capsulitis

Lateral foot pain

Stiff feet, feel swollen and burny/hot

Legs blue when standing still or sitting for periods

Stiff sore hands, can’t grip

Random pains - knees, under ribs
Mid back pain

Can’t turn over in bed - hip pain and dead arms

Hard to wee sometimes despite bursting

Tired, so tired

Coughing morning

Pms getting worse

Fluoxetine anxiety

Period pain getting worse

Heartburn

Dry hair

Dry hands

Migraine - light and blood sugar

Breathless

Blood sugar - angry when hungry

Hot/cold

cold night sweats

thank you!

How old are you ?

Oh yes that would be useful info! 37 coming 38

Hypermobility syndrome seems like an obvious start

well yes it does seem rather obvious now that you say it - high impact exercise has always made me vomit, need to sleep or given me migraines

Parkinson’s? If so don’t panic, lots of treatments available

I would ask for blood tests, especially hormones and inflammation marker. Hopefully something will be flagged and they can refer you on to consultant care. I have a lot of these symptoms and have diagnosis of Ankylosing spondylitis (autoimmune) and also pituitary tumour. I hope you get to the bottom of your problem.

Ejlers Danlos has lots of strange presentations. How long has this been going on?

TBH I’d just go to the GP with your list and let them narrow it down or make the relevant referrals.

Ehlers-Danlos Syndrome? POTS?
I don't think you need to know what bloods to ask for, it's your GP's job to work that out. It could even be a few co morbid conditions. See if you can get a double appointment so you have plenty of time to ask questions maybe.

Thanks for the responses

Maybe 5 years or so? now everything is so much worse and I’m realising it’s not normal to be in more or less constant pain

Eds and maybe hypothyroid?

As well as the above mentioned start of peri menopause and/or thyroid issues.

@henrilechat although I agree you shouldn't have to ask for which blood tests you think may be relevant but sadly in my experience of going back and forth to drs it's only when I suggested what blood tests I wanted did I actually get a diagnosis 😞

I would say:

Hyperthyroidism and insulin resistant PCSO.

Hypothyroidism (under active) sorry, my above was wrong.

I'd also suggest hypothyroid or B12d.
Ask for B12, folate, ferritin, fbc and full thyroid panel.

Here's a well informed B12d FB group www.facebook.com/groups/PAB12DSupportGroup

Yes I suspect my GP will require me to negotiate to get the bloods and possibly also tell her what I think might be wrong

I've got hyperthyroidism and had a lot of your list at diagnosis.

Peri menopause and maybe vitamin D deficiency. Have you ever had your vitamin D levels tested? Low levels can cause bone and joint pain and extreme fatigue.

Could be POTS as well which is related to ehlers danlos/ joint hyper mobility syndrome

Ex-nurse here. EDS/thyroid, but I am in no way a substitute for a proper doctor's appointment!

Diagnosis Mumsnet 😂 thanks all, will see if I can get an appointment

Ok definitely phoning today - I’ve woken up with the worst pain in back mid back around my ribs/bra strap, worse at the left, sort of squeezing

i can’t stand or sit!

That sounds like gall stones/gall bladder issues

I couldn’t get through to my gp at all today.

my husband very kindly pointed out today that I seem to be balding at the back of my head too. So that’s nice 🙄

Sorry you weren't able to get through to your GP. Do try again today.

Re the hair loss - that can also be a symptom of vitamin D deficiency (along with extreme tiredness and aches and pains) so it's worth pushing for blood tests at your surgery (or you can pay for private tests online).