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3 week migraine

27 replies

Lkakpk · 15/01/2022 18:53

So I’ve been diagnosed chronic migraine but I always wonder if it’s REALLY chronic migraine as I have spells literally aw severe as the first day that last weeks upon weeks . My longest was probably 6 weeks and I cried daily . Currently week 3 of an awful spell with blurred vision ( eye test ok ) . My worry is it has features of iih - more painful lying down and whooshing in ears but neuro is adamant it is chronic migraine and I don’t fit criteria of iih . I’ve also had suspicious optic nerves but have reviewing last years scans my nerves are just naturally tilted and crowned particularly on one side .
Does anybody else have these spells ? Constant throbbing with ice pick headaches throughout day too ? At end of my tether and waiting a nerve block

OP posts:
Lkakpk · 16/01/2022 15:13

@zoomies2021 interesting isn’t it . From what I’ve read iih is over diagnosed in people with no swelling and a lot of people actually have chronic migriane and headache conditions . Maybe you have both - poor you . I would just like definite answers but at same time terrified of a lumbar puncture

OP posts:
zoomies2021 · 16/01/2022 18:46

Lumbar puncture was uncomfortable but Not too bad. Wouldn't want another one but at least it confirmed the diagnosis. Think my migraines are related to hormone changes with my cycle. They are definitely worse since I got iih - think it all just becomes one big headachy mess. The positive (for me at least) is that the medication keeps the iih under control and sumatriptan stops my migraines so although I feel like a walking pill factory most of the time my life just carries on now despite it all!

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