Hello all,
I hope I haven’t overstepped, but since we don’t have our own board yet, I hoped this might be useful. I see people are starting threads with “CHRONIC PAIN” which does make them easier to spot, but it’s possible that a thread might move lower down in general health, before you see it. Here is the complete list.
I have separated them into support, general topics, and specific topics as best I could. So perhaps needing a handhold would be support, wanting to talk about PIP would be general, and wanting to discuss your diagnosis would be specific. I’ll update this thread perhaps every two days or so with new threads for the list:
SUPPORT
Would Anyone Be Interested in a Chronic Pain Board? (The original thread)
www.mumsnet.com/Talk/general_health/4161868-Would-anyone-be-interested-in-a-chronic-pain-board
Share Your Moans and Achievements
www.mumsnet.com/Talk/general_health/4188376-chronic-pain-share-your-moans-and-achievements
Accepting Your Diagnosis
www.mumsnet.com/Talk/general_health/4186503-chronic-pain-accepting-your-diagnosis
GENERAL
PIP Renewal When Your Condition is Variable
www.mumsnet.com/Talk/general_health/4189090-CHRONIC-PAIN-PIP-renewal-when-your-condition-is-variable
Trying to Adjust to Losing My Mobility and Using a Chair
www.mumsnet.com/Talk/general_health/4187392-CHRONIC-PAIN-Trying-to-adjust-to-losing-my-mobility-and-using-a-chair
Things That Help
www.mumsnet.com/Talk/general_health/4186690-chronic-pain-things-that-help
Diet
www.mumsnet.com/Talk/general_health/4187897-Chronic-Pain-Diet
SPECIFIC
Sudden Hip Pain
www.mumsnet.com/Talk/general_health/4187923-CHRONIC-PAIN-sudden-hip-pain
EDS (Ehlers Dahnos Syndrome)
www.mumsnet.com/Talk/general_health/4186399-CHRONIC-PAIN-EDS
Hyper mobility and Anterior Pelvic Tilt
www.mumsnet.com/Talk/general_health/4186387-CHRONIC-PAIN-hypermobility-and-anterior-pelvic-tilt
Wrist Cutlery
www.mumsnet.com/Talk/general_health/4186306-CHRONIC-PAIN-wrist-cutlery
I also thought perhaps we could introduce ourselves, just as much information as you’re comfortable with. Perhaps what kind of pain you have, how long you’ve been in pain, and maybe what you’d like from these threads (support, general information, new friends, a place to ask questions, etc).
My intro: I’ve been dealing with chronic pain that’s progressively worsened for nine years now from two autoimmune conditions causing incredible joint pain and ulcerating sores. You would think after nine years, I’d be used to it but... I’m still mentally/emotionally knocked for six every time something is “new” or gets worse, and I could really use the support of women who understand.