Axial spondyloarthritis

[Anon3699]

Hi, is there anyone here with this condition? I've just had a diagnosis based on my history of pain and fatigue. I know next to nothing about it and there doesn't seem to be much info out there. Amazon only has academic books on the subject for instance. Can anyone point me to any books/websites/info? I would be really grateful, I'm feeling a bit overwhelmed by it at the moment.

Yes me! Was diagnosed a few years ago after suffering for years. How long have you had it?

The NASS website is very good and HealthUnlocked.

Here to chat if you need to or if you have any questions. X

@nolovelost Hi, thanks for replying! I don't actually know how long I've had it, but I seem to have had periods of unexplained pain for decades. I've sensed for years that something wasn't right, particularly because of the fatigue, could never get to the bottom of it. It has ramped up the last 10 years tho and nowadays there always seems to be something hurting My pain can come from nowhere...but sometimes if I over do something that seems to set things off too. How does you pain manifest? Im still trying to work out what is the condition and what is 'normal' aches and pains, if you know what I mean.

Very similar to my story.
I have sacroiliitis, (affects the sacroiliac joint), that's my biggest problem. I also suffer with enthesitis in my ribs, ankles, wrists, neck, fingers....can affect my eyes and bowel.
Naproxen is my magic medication and I only take it when I really need it.
Where is the majority of your pain?