dd was rushed in yesterday now they said its fits not relux! anyone any info how i cope

[trace2]

dd is 10 weeks shes been in and out of hospital since born with going blue and i said last time she had fit but they said(they didnt see it) it was reflux, but yesterday was in and out of fits for two hours took third lot of meds to bring her out of it, shes now very sleepy, dont know me yet( is that normal) can anyone advise me what i can do to help her?.

i am going to ask question today but my minds gone black

bump

sounds very scary
if it isn't reflux what other tests are they doing?
Is your DD in hospital still

yes doing an mri scan and waiting to day to see the plan they have for her

How terrifying for you. When I was a teenager I babysat a baby who would go blue without warning. I was there the first time it happened (luckily her mum was there as well!) and it was terrifying. She had various tests but in the end was put on medication and was fine after that. Hope they get your dd sorted quickly.

I was only thinking about you the other day trace. Sorry to hear that things aren't any better. Did they not do the ph study in the end?

No experience of fits really (dd had a couple whilst ventilated but nothing since)but I think it is normal for them to be quite confused afterwards. Hope you get some answers very soon - you've been worried for so long

My dd has had a few episodes of going blue. She has also been diagnosed as having reflux.
She was also refered to a cardiologist as a precaution as my family have a terrible cardiac history (my sister died when she was 35) My dd may have long QT syndrome. She could drop dead at anytime which is not reassuring. Back in a few weeks time for repeat tests, I'm praying they come back normal and that she just wiggled a bit during her ecg.