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Chronic pain - what medication are you on?

60 replies

DaveMyHat · 01/11/2019 11:50

I'm ready to go to my GP and threaten to kill myself if they don't give me something. I am taking paracetamol, sometimes I get cocodomal OTC. It's not really helping. GP gives me antidepressants. Despite what I just said I'm not actually suicidal, I'm just really fed up.

OP posts:
Pasithea · 01/11/2019 11:56

Ask to be referred to a pain team. I’m being stopped from taking medication I’ve been on for 20 plus years because all of a sudden it’s not suitable but there is no alternative. I literally feel your pain.

DaveMyHat · 01/11/2019 12:17

Sorry to hear that Pas. Did the medication stop working for you, or what was the reason that they stopped it? I hope they find you a new one soon. I will ask about a referral to a pain team, thank you.

OP posts:
Groovee · 01/11/2019 12:39

I'm on 10 mg of amitriptyline for fibromyalgia. That really helps me x

DaveMyHat · 01/11/2019 13:00

Thanks groovee. I'm glad you've found something that helps you

OP posts:
Silvercatowner · 01/11/2019 13:40

I also take amitriptyline at night. I am prescribed codeine but I'm not sure it actually helps.

Groovee · 01/11/2019 14:11

I'm limited in my pain relief due to reflux issues but do have naproxen every now and again.

Tram afoul was fab but the gastric consultant said no.

Redannie118 · 01/11/2019 14:25

This reply has been withdrawn

The OP has privacy concerns, and so we've agreed to take this down now.

PotterHead1985 · 01/11/2019 14:54

I'm another who can't really take NSAIDs too often as of a hernia and GERD. They tried me on Amatryptaline for pain and sleep. Got nowhere. Was on Lyrica for years but that just fckd with my head.

Currently on a mix (not at the same time like, lower dose or higher dose depending) of Solpadine/Solpadol.

ColdTattyWaitingForSummer · 01/11/2019 14:59

For fibromyalgia and joint pain I take.. cocodamol (the strong prescription only ones), gabapentin, and then amitryptiline at night. Plus omeprazole to protect my stomach. I sometimes don’t think it’s helping, I still get a lot of pain, but I’m definitely worse without them.

DaveMyHat · 01/11/2019 21:23

@Redannie118 I have been diagnosed with eds and fibromyalgia. Because of hypermobility I have arthritis in some places, wear and tear in different bones, disc misalignment in cervical spine (which may be causing nerve damage).

Like other posters I also have acid reflux so can't really take nsaids.

OP posts:
DaveMyHat · 01/11/2019 21:24

So I think it's joint and nerve pain.

OP posts:
DaveMyHat · 01/11/2019 21:25

It seems people with similar problems to me are all getting prescribed stuff. What am I doing wrong? Or can you get these things OTC?

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pooopypants · 01/11/2019 21:27

Fibro doesn't really respond to NSAIDs anyway, in my experience, I also have fibromyalgia.

I take amitriptyline (?) at night, it enables my muscles to relax enough for something resembling sleep. I generally just take paracetamol, I dislike codeine as it makes me constipated and also don't want to become dependant on it. I've been known to take nefopam too but if makes me feel sick so I limit those

FaithInfinity · 01/11/2019 21:29

I’ve had all sorts because I’ve had periods of chronic pain. Previously I’ve had paracetamol, codeine, pregablin and then gabapantin. Currently recovering from bulging discs in my neck, I was on codeine which was helping a bit. Then I was put on Amitriptyline to prevent migraines and it’s helped the neck pain too.

I would go back and ask for a referral to the chronic pain team locally to find the right drugs and treatment for you.

fantasmasgoria1 · 01/11/2019 21:32

I take cocodamol 30 /500 mg up to 8 a day. I take pregabalin for anxiety but it helps with my nerve pain too. My vertebrae is grinding and my sciatica has gotten worse so I have seen the consultant and am waiting for an appointment for an mri scan so he can determine the best course of action.

DrMadelineMaxwell · 01/11/2019 21:32

Gabapentin for my chronic, nerve pain condition (TN).

OctoberLovers · 01/11/2019 21:35

I cant take nsaids

I take meptid

MyRaGaiaStarFishPieA · 01/11/2019 21:36

I have psoriatic and rheumatoid arthritis and Sjögren's syndrome and am waiting for knee replacements. I take 100m amitriptaline and two dihydracodeine at bedtime. It helps but not much.

OctoberLovers · 01/11/2019 21:36

Gabapentin and pregabalin are good for "nerve" pain

Mrsmadevans · 01/11/2019 21:36

Had really terrible pain a few months ago. MRI showed spinal stenosis from bulging discs and nerve impingement. I have never had pain like it .
So l had Gabapentin, Voltarol, Co codamol, Tramadol , Zacin cream, tried Amitriptyline as well but it made me feel suicidal. I had to take it for months, l also had physio. I am pleased to say l have been able to cut them out now and just take 2 x Paracetamol & 2 x Ibuprofen twice a day and l can manage on this.
I was very reluctant to take the pain relief, l was afraid of getting addicted but my physio made me see sense and l took it all in the end. l was like a zombie mind but it worked! Go and see your Gp and get some proper medication OP.

Mrsmadevans · 01/11/2019 21:42

Have a look at this OP it may help you Flowers
www.ehlers-danlos.org/what-is-eds/information-on-eds/pain/

AbbieLexie · 01/11/2019 21:42

Pain clinic referral asap. Really helpful. Have you thought about reflexology to help with the pain?

DaveMyHat · 01/11/2019 21:44

Gabapentin and pregabalin are good for "nerve" pain

Is nerve pain not the right thing to call it? I just assumed as they said some of the problems with my arms/shoulders may be from where the disc misalignment is causing damage to the nerves.

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DaveMyHat · 01/11/2019 21:45

@Mrsmadevans thank you x

Abbie I don't know what reflexology is! But I will Google it. Thank you too x

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avocuddl · 01/11/2019 21:51

What are the side effects of Pregabalin?
I'm currently on Gabapentin but think it's making me go mad!!