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Original poster

Bladder pain syndrome

7 replies

Mrbumpoid · 26/09/2019 18:27

Or possible inflammation secondary to multiple examinations and catheters after vaginal haematoma & episiotomy.

Have been given diclofenac and going back for a scan.

Am in CONSTANT pain and have been for 9 weeks.

Anyone with experience?

OP posts:
Bumpandtoddler · 26/09/2019 19:32

I have painful bladder syndrome and totally sympathise!! Wee in the bath, gross I know but it works, drink all of the water and find yourself a good urologist. I have to self catheterise now to put medicine directly into my bladder, ialuril. Best medicine I've ever had. Good luck. Dont be fobbed off

Original poster
Mrbumpoid · 27/09/2019 08:09

Baths seem to make it so much worse afterwards?

OP posts:
Original poster
Mrbumpoid · 29/09/2019 10:06

Hello all,
With interstitial cystitis...

  1. can it come and go during the day? Sometimes mine can be painful but then suddenly I’m fine for a bit then it's back.

  2. did d-mannose help - how long to take effect?

  3. did tolterodine help - how long to take effect?

  4. did you follow the diet and did it help?

  5. how did yours start?

  6. did yours burn before and/or during and/or after peeing?

My consultant is currently deciding whether it is interstitial cystitis or just still recovering from three separate catheters after childbirth (2 months ago) and then some further surgery.

He hasn't done a cystoscopy yet.

OP posts:
Bumpandtoddler · 29/09/2019 11:16

Hello! Glad you got to speak to a urologist. In answer to your questions:

  1. Yes mine comes and goes through the day, better when I have a full bladder, worse after I pee.
  2. Never tried it.
  3. Never tried it
  4. Yes the diet has been revolutionary for me, I found I am triggered by grapes! And other things that alter the pH of my pee.
  5. I think I've had it most of my life and was only diagnosed in my 20s.
  6. All of them depending on the flare.

I was diagnosed after a cystoscopy and they saw the lining of my bladder bleeding

Good luck!

Original poster
Mrbumpoid · 29/09/2019 12:32

Thank you for your reply. Did you see a nutritionist or did you work it out by elimination?

OP posts:
Original poster
Mrbumpoid · 29/09/2019 12:32

Thank you for your reply. Did you see a nutritionist or did you work it out by elimination?

OP posts:
Bumpandtoddler · 29/09/2019 13:04

No I did it myself, I didn't get offered a nutritionist but if you do then snap their arms off. It is hard to do it yourself and it takes a lot of trial and error

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