So, I’m back. Some of you may remember a thread I had at the start of the year... basically I just need some reassurance....
I started getting a pain in my bladder last October, went to the gp got given trimethoprim... did nothing, 5 types of antibiotics, 1 operation to remove a small benign bladder tumour (ironically totally unrelated to my pain), 1 CT scan, 3 ultrasounds and 8 months later and I am still in exactly the same boat.
My bladder is burning 24/7, mornings and nights are worst... I wake in the night up to 8 times in agony bursting to wee, by the 3rd time nothing’s even coming out and my bladder is so sore in the morning from holding in basically nothing it takes hours to calm down.
I’ve turned down numerous social things this year for fear of not reaching a loo in time or from embarrassment of continuously going.
I’ve read every thing I can find on the internet, I’ve stopped eating everything from tomatoes to gluten, totally cut out alcohol and caffeine... virtually stopped having sex. Even painkillers seem to trigger more pain.
Twice very briefly I thought things were improving but it just came back with a vengeance.
The only time I don’t hurt is in the shower or bath, I tried cutting baths out for 2 months incase that was a cause but it didn’t nothing.
I just need to know other people out there are going through this and I’m not alone because it’s ruined my life... I can’t sleep and I’m snappy with my kids and I cry every morning because every morning I wake up and it’s STILL there.
I’ve tried everything from diet changes to excieecise and d-mannose and cranberry tablets... I am at a loss. The lack of research on this depresses me as well as the lack of interest from the GPs.
Is anyone else experiencing this? Will this ever leave me??