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Help! Jaundice and brain damage!

36 replies

lokka · 26/07/2007 13:15

Please somebody put my mind at rest. My ds is now 10 weeks old.He had jaundice when he was born on skin and in eyes, I noticed it but was told it was slight not to worry and if it was still there in 2 weeks go to the hospital for tests. I continued to see Doctor who told me it was OK but at 3-4 weeks when he still wasn't better..and I think even more yellow, I took him to hospital. They did blood tests and his billirubin levels were 12.9, they said it was breast milk jaundice and not to worry. At this point I saw my doctor again who said that he was a little floppy, I started to panic after reading things on the net. Ds was passing most of the day sleeping and eating(by the way, he eats really well and is now 6 and a half kilos). His Jaundice is finally going..he still has slight yellow in the eyes and a tinge to the skin but the levels are now 5.2. He is also starting to pass more time awake and this makes me feel much better. My worries are that when he was born no blood tests were done and maybe his bilirubin levels were high and have some way damaged his brain. I'm looking at him constantly for signs and not enjoying him to the full extent. I think his muscle tone is a bit better, but how do I know? He is smiling, starting to bat at objects but not reaching out yet. He still sleeps quite a lot but is increasing his awake time.I am trying to enjoy him as much as poss but sometime the worry creeps back. Anyone have a similar experience?

OP posts:
drosophila · 28/07/2007 17:06

I was very lucky to be in Kings hosp I think. I know of one couple where their child was transported to Kings for the equipment. I think if even sever jaundice is controllable it must give comfort to OPer.

popsycal · 28/07/2007 17:13

I agree - hope the OP feels more reassured now.

lokka · 28/07/2007 18:14

Thanks everyone..it's really comforting to hear other stories, I'm glad I did this, it felt weird asking people on the net..I've never done this before!
Just to reply to a couple..Popsycal-DS levels were 12.9 at one month, I have no idea what they were when and if they peaked!
Drosophila and Bubblagirl-he's had loads of sunlight (bonus of living in Spain!!),and he's feeding really well.Bubblagirl- he does follow moving toy!
I suppose my big worry was when they told me he was a bit floppy, I hope it was just on that day, he's a lot more alert now, although still sleeps loads.

OP posts:
popsycal · 28/07/2007 18:18

Do go to your gp if you fel at all worried.
Hope you feel ok now.

I can check ds1's one month levels for you tomorrow if you want (his book is in th car - which dh has and he won;t be back until tomorrow....)

lokka · 28/07/2007 18:24

Thanks! He is going to the Paed quite regularly..on Friday again..will check his muscle tone then. Would be great to know your DS's levels at one month (we sound like doctors!)whenever you get a chance.

OP posts:
lokka · 30/07/2007 17:31

bump - just interested if there are any more opinions/experiences on the matter - TIA

OP posts:
lokka · 31/07/2007 19:54

bump

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margoandjerry · 31/07/2007 21:57

I worried about this too. My daughter was one month prem and had jaundice (can't really remember what her levels were) but she slept and slept and slept (22 hours a day). I was convinced there was something wrong. She didn't really do anything till 12 weeks at which point she suddenly decided to get going. She's nearly 10mo and perfectly fine. Lazy as hell but fine.

lokka · 01/08/2007 06:45

Ds approaching 12 weeks now and really waking up..starting to do much more. still looking for signs in back of my mind though!

OP posts:
mankyscotslass · 14/09/2007 22:13

How is DS now?

lokka · 04/10/2007 12:45

Hello! He's really well thanks for asking! There is still a little yellow in the corner of his eyes..Incredible because he's 4 and a half months now but he's bright and doesn't sleep all day now!That was my main worry..I saw other babes his age wide awake and alert and he certainly wasn't.
I am very relaxed now and happy to have had mumsnet to help..thanks a lot!

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