PSORIASIS

[debbie102]

anyone suffer with this - sick of taking drugs and feeling rotten 24/7 any ideas please help any suggestions welcome, its everywhere im currenlty on an anti cancer drug make me feel tingley all over numbnes and hot all over works just dont know how much longer i can go on with side effects suffered since i was 11yr old, under skin consulant(not literally) they just keep saying you have to be persistant feel like a snakes shredding its skin its horrible feel lik a lepper any ideas thanks debbie

We are in Surrey but dh is doing a trial up in London. Has your dh had difficulty getting on a trial, twig? This was the 3rd one that dh was offered, but the other 2 were Phase 2 human trials, which he was a little nervous about, where as the one he is on currently is a phase 4 (so already a licensed drug).

Right, we are in Greater Manchester, wonder whats going on at the MRI? will get him to ask. Glad it seems to be working for your DH

gawd biologics been used very succesfully for years in the states .. I wouldn't have any nervousness over it ... I know of juveniles taking it (an 8 year old)

DH's rheumy said to try the traditional ones first and luckily, for us, the methotrexate seems to be working well atm

The two trials were for new unlicenced drugs twig. It was shortly after the whole thing at Northwick Park hospital, and dh is a bit of a worrier anyway.

The methotrexate did work for dh but it was the liver issues that concerned his specialist so he was taken of them. His liverenzymes went up soo quickly they were going to send him for a liver biopsy to rule out any other problems.

well thankfully DH's bloods still normal after 3 years

Dh's blood ok after a year of it, but still not improving the symptoms...

have you tried a gluten free diet manky?

Debbie .. I'm sorry we seem to have hijacked your thread .. shall we move elsewhere?

I think that might be an idea, sorry Debbie

hi

i was on cyclosporin a few years back for about 6 months and had a great response.

i get palmoplantar pustular psoriasis on hands and feet.

i didn't have any side effects like you've described but my bloods came back high and i wasn't informed.

i ended up with an agonising build up of uric acid in my finger joints - kidneys weren't functioning 100%. at it's crudest i had gout in my fingers!

because they didn't inform me of the bloods they ended up taking me off cyclo overnight and i had a massive rebound.

a course of oral steroids took about 10 days to get it back under control.

i have found that dairy and in particular chocolate (eek!) have a direct affect on my hands/feet and skin in general.

so i try to keep dairy to a minimum and occasionally i go dairy free for a month or two to really give myself a break.

i also use a fabulous body and face moisturiser that you can get here: www.serftosurf.com/bodystuff.htm

i use bodysex and face phirst and it really helps.

there's also a great UK psoriasis site with loads of support and information: psoriasis-help.org.uk/The_UK_Psoriasis_Help_Forum.html

hth