I have name changed for this as it could be outing for me!
At the moment I have had an infection in my sinuses for the last 9 months. ENT have been very thorough, have seen me 2/3 times a month, loads of different types of AB's plus 3 operations. When I see them they suction nose. But unfortunately for me the infection keeps on reoccurring. I've really had enough! Each time I go swabs are sent off and it comes back still showing signs of infection.
I use neilmed twice a day
I have a specific antibody deficiency resulting in me getting a fair few sinus infections. I have known about this for approx 10 years, it has never been this bad! Due to this infection I have been started on IgG therapy, so far I have had 2 sessions (I am going to have it weekly).
I am seeing ENT this week and really need some ideas on what can be done next. It's a strange infection - thankfully no fever but I do suffer from blocked/runny nose/face pain and at times the most awful smell. I did ask a couple of months ago if they would give me IV ABs but was refused due to no fever. I do understand this but needless to say I feel very frustrated at not clearing the infection. The infection almost cleared when I was taking Linezolid but I was only allowed to take it for 3 weeks. As soon as I stopped taking them within 2 weeks infection was back.
Has anyone got any ideas on what I could ask for?
Thanks in advance