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APECED - Any Experience

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NinkyNonkyNinkyNonk · 06/08/2018 21:27

My niece has an auntiimmune disorder APECED:

https://en.m.wikipedia.org/wiki/Autoimmunepolyendocrineesyndrometypee1

I am struggling to find any information from other patients with it to share some experiences. Does anyone know anyone who might know about it? My niece is really very ill right now, and it's a complex disorder we don't know much about.

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