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Carleesunnysunsun - back home (early) and an update!

11 replies

Charleesunnysunsun · 26/04/2007 23:00

First and foremost let me say the biggest hugest thank you to everyone who posted and sent things to our house or the ward, Jack was chuffed to bit's will all his mail and it really rightened his day. Quie frankly i would love the kiss you all to smiterenes!

The ggod news is he has had a broncoscopy (camera down the lungs) and they didn't find anything at all no iflamation no sticky gunk no nothing which is the best result ever! All the samples and biopsys they took whilst they were in thier were fine and clear to so we have been sent back home after 9 days worth of IV antibiotics.

Sorry we buggered off to London so we wern't able to post alot of updates, we didn't know we were going untill we arrived at our local hospital and they said 'oh by the way were taking you to London later' it wasn't untill we got to the Royal Brompton hosp that they said we would have to stay until he was better.
I will so be having words with Jacks dr when i next get a chance to talk to him.

It's been tough since DP could only stay with us a few days, as i'm sure you all know or can imagine 2 bored babies can be hell, jack gt so bored he took to shouting the place down and Harry just screamed anyway.

Jack found the segrigation really difficut as the 2 other cf children ont he ward were 'regulars' so they seemed to get prefrence ove him when it came to the playroom which i thought was highly unfair, but hey ho were home again and ready to face the next thing that gets thrown our way!

Let me thank you all again so, so much anf to who ever sent 'Jazzy Lion' he is now wrapped head to toe in bandages and has a long line drip in his arm.

OP posts:
Charleesunnysunsun · 26/04/2007 23:16

Hi sorry just caught up with everything that has been going on with MN whilst we have been in the hosp.

About the paypal and ebay things, it's totally amazing guys i'm otally welling up here your parcels and letter were great but to do this on top, you really don't have to.

True it is hard but i find putting on a brave face and plodding on so much easier than crumbling into devistation, plus i refuse to let my boys see me looking scared or anything like that as it will make them feel afrad and upset to.

Thanks so so so much, i really don't want anyone to go out of there way for us.

OP posts:
staceym11 · 27/04/2007 08:10

charlee, you deserve this, you've all been through so much! we'r trying to give something nice to someone who really deserves it!

i was thinking are you around between the end of may and begining of june? im on holiday in selsey and would love to come and see you and the boys with the holiday stuff and take photos so people can see you all....if that would be ok?

Charleesunnysunsun · 27/04/2007 08:26

Stacey that would be fab! Of course i will be around to see you and your munchkins Just let me know a date and we can meet up and have a day out at Selsey beach with the kids or something if you want.

OP posts:
Saggarmakersbottomknocker · 27/04/2007 08:46

Charlee - glad to hear that you're home. It's so tough being in hospital for long periods - and even harder when you have other children to cope with.

staceym11 · 27/04/2007 09:04

a day at the beach would be brill! im so glad your little man is home!

mygirllollipop · 27/04/2007 09:14

Glad you are home, hope you both found the stuff posted esaed your stay.

tjacksonpfc · 27/04/2007 09:14

charlee where abouts are you as there is a big rabbit show in chicester on the 6th may that im sure the boys would love we are showing our rabbits there.

FoghornLeghorn · 27/04/2007 09:26

Glad you are home Charlee - Wonderful news about Jack's lungs - finally some good news for you
Hope you manage to get something nice with your holiday money

Charleesunnysunsun · 27/04/2007 20:19

tjacksonpfc u am in Chichester! where is the show i will deffo come wwih the boys!

Thanks for all your replys.

OP posts:
tjacksonpfc · 28/04/2007 10:15

hi charlee its a a leisure centre there im away this weekend at a show i will get the details for you and post them on here monday ok

littlepicklesmum · 04/05/2007 12:02

Am so pleased you are all home now, you have been in our thoughts. Hope the money helps towards you spending some time together. I do hope you have managed to get plenty of help from local groups / organisations. Please keep us updated. Big hugs to your little man.x

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