Cystitis Cystica anybody?

[Holyknight]

I’ve just been diagnosed with it. I’ve never even heard of it. Has anyone got it /had it or know anything about it.
I can’t seem to find much online and what I have found seems to have many possible suggestions as to the best way of treating it. I’m so fed up and it’s msking life so miserable, I would do anything that has the most chance of managing or curing it.

Forgot to say I’m due for a follow up appointment in 3 to 4 weeks time to discuss treatment but I have little faith in the consultant I’m seeing. So far he hasn’t taken things too seriously and only did the op that found the cause because I kept coming back saying the symptoms were getting worse.