we were told thwe LVAD patients who are stable cant go on the urgent list

[misdee]

yes they bloody well can!

read here

so if you are in acute phase on the LVAD you can't go on the urgent list but if stable you can? confused!!

its ery confusing.

oh misdee. [hug] it's such a shame you have to second-guess them at every turn.

but harefield can only have 8 urgent cases at any one time.

the thing is, i know there are patients at harefield in more need than peter, but my god, they havent been waiting for over 2 years. 2 f*ckign years of our lives, just waiting for the sodding phone to ring.

peter will be taking that page with him to his next appointment. because we want answers. i havent woken him to tell him that yet. wil have to wait till morning.

and iknow i am being a brat about it, but i just want our lives back now. is that too much to ask?

the last thing you are being is a brat, misdee. you're a bloody saint about all this.

its surprising how little information they wil lgive you. amazing what you can find out on the internet with a little help...

info being printed off for appointment next week.

Oh god, you're not being a brat. How you have kept going these last 2 years I can't imagine.

Fingers crossed for you permanently xxx

MIL is taking him to the appointment.

although we know that an 'urgent' heart coming out wouldnt be a perfect match, right now its the only hope we have as there are around 38 patients on urgent i think. which means that people on 2nd list havent got much hope. i would rather he got one when stable than going through end stage again and in a bad way.