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Original poster

Caroli disèase

1 reply

user1476437421 · 27/12/2016 13:53

Hi, I've just been diagnosed with Caroli disease, is there any one else out there with this condition, I would be grateful for some advice. Thank you

OP posts:
GeriOMH · 07/04/2017 22:14

Did you ever get any response to your post?
I just signed into Mumsnet on false pretenses, (wrong postcode, I'm in the US,) because i came across the reference to Caroli.
An infant in our family has just been diagnosed, her Mom is devastated, and the rest of us are just trying to learn a little more about it.
God bless

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