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epilepsy- absences- experiences please

54 replies

Jimjams2 · 05/11/2006 21:41

DS3 had an absence followed by a period of unconciousness for 8 minutes this week. It's been marked down as a febrile convulsion (which it prob was - his temp was 41.5). However the Romeo thread has got me thinking. There have been a number of times in the last year when I've thought he might be having an absence- he kind of goes of in a trance and doesn't respond- doesn't go stiff or floppy or anything though- not for that long- just like he's lost in thought- 20 seconds ish?

Given that he's now had a kind of confirmed absence should I be worrying about these others (or not worrying, rather, doing something). I don't particularly want him on epilim-in fact I don't want him on epilim at all do they give that for absences? Or are they happy just to monitor.

Hmm was thinking of just observing and if it happens again then taking him to the docs. Would it be terribly irresponsiible to just observe for now? (please say no )

other people by the way have said "oh look he;s in a trance", but I'vbe never saiid to anyone that I thought they could be absences.

OP posts:
lou33 · 09/11/2006 20:46

we like to beat ourselves up

Jimjams2 · 09/11/2006 20:48

thanks lou (and everyone else on here). Been feeling kerfuffled with mumsnet recently, but this has reminded me how good it can be.

OP posts:
lou33 · 10/11/2006 09:04

just like old times, those were the days

Clarinet60 · 11/12/2006 13:06

jimjams, I'm a bit lost with what's happening, as I only dip into MN every so often. I read somewhere that you'd been to hospital with his seizures. Have they definitely been diagnosed as seizures now? If so, feel free to cat me or chat on here mate, as DS2 still has them so I know what you're going through.

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