Anyone with Porphyria on here?

[Reenypip]

I have the type 'variegate' porphyria.
Just wondered if there was any other net mums who have porphyria or have family with it?
VP is genetic, but was very lucky that my baby boy hasn't got it.

Hi..Im Carol and i got diagnosed with VP last september...my eldest son as it and my eldest sister has it..but my daughter and youngest son hasnt..but i want them both testing again..just to make sure.....where you from?