Bit anxious about DNiece - raise CA125 blood test

[Dillydaydreaming]

Anyone knowledgable about this stuff?

Basically my DN has an ovarian cyst (a chocolate cyst) secondary to endometriosis. A few weeks ago she had a massive flare up of this and was admitted to hospital for a few days for rest and assessement.
Today she has gone into hospital to have the cyst removed and surgery has been delayed as her CA125 result came back massively high.

CA125 is a marker for Ovarian cancer but non-malignant conditions DO cause a rise in it as well such as....endometriosis!
However, the consultant has said that the result is over 500 when with endometriosis it's usually between 100-150 (normal level less than 30).

So DN has to have an MRI scan later today which I am assuming is to see what type of surgery is best.

The other thing is that this blood test was done just 48 hrs after she was discharged from hospital following her flare up.

Anyone know how likely it is for this result to be secondary to the flare up?

DN is only 22 so I know that statistically she is unlikely to have Ovarian cancer but I can't help worrying. Have had a long chat with her on the phone thhis morning - she is anxious and just wants to have the scan out of the way.
I have said to her that the fact her blood was done so soon after the flare up might explain the result but that obviously the consultant has to check it out.

Anyone knowledgable about this sort of thing?

Thank you shineon.

She had had the MRI and is on her way home. Has been told to ring the consultants secretary for a further appt.
Cannot believe they are leaving her to worry all weekend....and this is private too!

Have told her to phone secretary as soon as she gets home.

Have read a bit more now about this test so know it is a screening test rather than anything diagnostic. And there was talk that her cyst had started to rupture when she was last admitted - evidently this makes CA125 levels go sky high.

hope she and you are ok

Thank you both - her consultant phoned this evening and ...,it's endometriosis as suspected. Her op has been put back until next Friday which has not eased her. At least it's not cancer though - so relieved.