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Original poster

Childhood brain tumours - survivors stories

6 replies

playthedayaway · 07/03/2011 19:31

Hello all,

my son, (7) was diagnosed with a brain tumour called medulablastoma, in september 2010 but I've yet to hear of anyone who has survived this.

It's so scary and he has been through so much but it doesn't matter what statistics I'm told or who I talk to I still haven't spoken to anyone who has or who has known a child to see the other side of this disease.

Can anyone please share their stories of this with me?

OP posts:
cabbageroses · 07/03/2011 19:34

so sorry. no experience- have you not been put in touch with any support groups via your consultant or GP?

Original poster
playthedayaway · 07/03/2011 19:39

There's loads of support but still haven't come across what I want to hear just yet!

OP posts:
Jezabelle · 07/03/2011 20:46

Bumping. . . good luck.

Jezabelle · 07/03/2011 21:04

www.virtualtrials.com/survivealex.cfm

Different sort of tumor I think but worth reading.

Original poster
playthedayaway · 07/03/2011 21:13

Thank you Jezabelle I'll check it outxxx

OP posts:
Jezabelle · 07/03/2011 21:34

There is a FB medulablastoma support group that I just found btw.

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