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ED referral experiences (adult)

7 replies

groovejet · 15/10/2026 07:21

I started a thread in the summer when I was anxious about approaching GP for support, but wanted to start a separate thread to share my experiences so far of being referred and having a diagnosis of an, it helps to get my thoughts out and may help others starting the same process.

I approached my GP in June, my eating had become very restrictive, despite my worries, the GP took me seriously and sent a referral to the hospital. Had some delays at this stage because he sent it without doing bloods and then the blood test appointment got cancelled.

My referral got accepted, again some delays, the first date I couldn't do, the second they had to cancel and I had my first appointment last week. So 4 months from first reaching, which given the delays the NHS have, is understandable, but the downside is that in that time my restrictions had gotten worse and my BMI continued to lower rapidly.

First appointment was with an allocated clinician lead and then with an allocated nurse, both seemed lovely and the clinician was easy to talk to, which is good as I was able to be fully transparent about my illness, it was mentally tiring though as it does force you to accept some of the realities of the situation.

After this appointment, discussing habits and having physical tests, she presents my case to the rest of the team so they decide what treatment pathway I need, so I am back next week to find out what the plan is, and what the wait time is to start that plan, and what the procedures are whilst I am waiting.

It is a scary process, but I am glad I reached out to my GP back in June when things had started to get really bad because I am not sure at the position I am in now I could physically tolerate a 4 month wait. And whilst I worry about what recovery will look like and how I will cope mentally with that, I know that I have taken so many big steps into accepting I have an eating disorder and taking the steps to start recovery.

OP posts:
Snickersnotomato · 15/10/2026 08:57

That’s amazing OP. Well done for taking that difficult first step and I’m so glad that they have been treating you seriously.

groovejet · 16/10/2026 06:14

Thank you, it has been a lot to process, I have spent so long downplaying the situation so the fact that they are taking things so seriously, is starting to make me accept some realities of the situation.

Everything about this illness is exhausting, and it feels so lonely. I think it is hard for people around me who know understand it, so even though they are well meaning their advice is not always helpful.

OP posts:
RedPanda2022 · 16/10/2026 21:31

Well done. I am in treatment for anorexia atm so sending strength and hope!

Mummyoflittledragon · 17/10/2026 01:57

That’s great you’re going to be given a plan. And well done for admitting to yourself and reaching out for help. These are all very important steps for taking charge of your recovery. I totally understand the frustration of well meaning people, who really don’t get how it is for you. I hope you now get the support you need.

groovejet · Yesterday 18:41

Appointment today was quite full on, weight has still dropped despite me not being in work for a week so I could get some much needed rest.

Ended up having to see the consultant who was very direct about how serious things are for me. The plan for now is to make very small diet changes with the support of a dietician and close monitoring of bloods and weight, any more decline then they will be pushing for certainly day patient if not in patient . The goal for now is to reduce the physical risks and then think about treatment to deal with psychological side of things

Been a lot to process and as hard as it was to hear I do need to listen to the reality of this illness. I was planning on going back to work after the half term but he has said that I am to not think about work for 3 months, which will be hard, I feel guilty for being off work already and from a mental point of view it was a guaranteed 10k a day steps and that is hard to let go of.

Each day is a new day and small steps are to be celebrated.

OP posts:
Mummyoflittledragon · Today 07:39

Well done for going in. And for listening to the consultant. Your health is far more important than work. I hope you manage to make progress. Micro steps.

makemineadecaf · Today 07:44

Well done for taking the first step.

However I’m shocked and saddened it took 4 months. My dd16 has weekly treatment and the referral took just 4 days for phone triage and 8 days for face to face assessment then the weekly therapy started immediately.

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