My dad was diagnosed with early onset Alzheimer's 5 years ago and started a new drug last year as part of the trial. There was however a 50% chance that he could have had the Placebo but after the 1st year he was guaranteed the real drug for an additional 2 years.
Last week we had to go to Hammersmith Hospital for some more brain scans and yesterday we were told that he can no longer continue with the trial. He was unable to give his date of birth, address or consent to continue with the trial so he no longer qualifies due to the decline in his cognitive function.
I'm quite disappointed as I feel that we have wasted a year of daily injections and 2 trips to London and now because he is showing worse symptoms of the disease he is on the trial for he cant continue. I know there was no guarantee of anything working but this was the last bit of hope.
I'm trying to focus on the here and now but it is so hard to try not and think what the future holds as I see my mums coping mechanism failing by the day and as primary carer it is difficult for her.