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Chronic pain

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EGPA - 'formerly Churg-Strauss syndrome'

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MrsClairmont · 21/10/2026 17:01

Ridiculous for a condition to have such an un-spellable name that like the artist formerly known as Prince it has to be known by its previous name!

Anyway after more than 3 years of being unwell I have just started treatment for this - Fasenra injections every month for at least a year. I am struggling a bit with the diagnosis as it seems so unclear. And wondering what I should expect from Fasenra - the injection was so quick & easy that I'm struggling to take it seriously as a medication. I mean it was done in 20 seconds! So I wondered if anyone else had any experiences of it they could share?

(Incidentally I was initially diagnosed as having fibromyalgia- a diagnosis vigorously rejected by the NHS respiratory consultant who looked at blood tests & symptoms & diagnosed EGPA. I wonder how many other women diagnosed with fibromyalgia might need to have their esonophil (excuse spelling) levels looked at.)

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