I have Ehlers-Danlos syndrome III (joint hypermobility syndrome) and know there's a fairly good chance I could pass it on to my dc - not sure of precise probability, though. So I'm aware that I'm probably looking out for signs in my dc.
DS is now 2.6 and I think he's definitely hypermobile (as in he has hypermobile joints, not necessarily the pain and other associated problems that come with the syndrome). He's very flexible, sits in the W position, etc.
But recently he's said/done a few things that have worried me a bit - he often mentions that his arms hurt, pointing to his elbows. Sometimes he's a bit stumbly when he walks, especially after a run-around - his ankles and knees sometimes seem to buckle a bit. He has very flat feet.
I wasn't diagnosed properly until I was in my 20s, even though I had had daily chronic pain since the age of 12/13. I was diagnosed by Prof Grahame at UCH and have done a pain managment course; fortunately I mostly self-manage these days. But this does mean I'm not "in the loop" for knowing how best to get ds checked.
Anyone with any experience? Would you get him checked out? And should I insist on a referral to someone?
TIA